Emotional well-being

Individuals with congenital heart disease face tough health issues throughout their lives. Often, they are coping with a lot of uncertainty about how their disease might progress. Family planning can be a critical issue for people with complex defects so as to avoid potentially life-threatening situations in terms of birth control and/or pregnancy. Planning for good health insurance so as to maintain access to one's doctors can be an added layer of stress.

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Many of these issues arise during the transition from childhood to adulthood. Learning about one's condition is fundamental in order for preteens and young adults to make wise decisions that ultimately affect their adult lives. Selecting a career that is compatible with their condition and maintains lifelong medical insurance can help alleviate some stress. Proximity to specialized medical centers may need to be a factor when considering where to live.

Despite careful planning, feelings of anxiety and even depression are common among people coping with chronic health conditions, such as congenital heart disease. So if you think you may need help, seek it out. The Adult Congenital Heart Association is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. This national organization serves and supports more than 1 million adults with congenital defects, their families, and the medical community. For more information, http://www.achaheart.org.