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Managing
The key to managing hemochromatosis is regulating iron levels.
Regulating iron levels requires:
• Phlebotomy at regular intervals for the life of the patient. Phlebotomy three to four times a year for men, and one or two times per year for women, is probably sufficient in people without complications who have brought their iron levels down to low normal levels.
• Monitoring of hemoglobin. Hemoglobin needs to be monitored so that anemia is avoided. People who have hemochromatosis should not take iron supplements.
• Restrictions on diet and alcohol. Patients should restrict their vitamin C and alcohol intake, as these both facilitate iron absorption. Also, they should avoid raw shellfish, as they are more susceptible to Vibrio vulnificus infection.
In addition, patients should be screened regularly for liver cancer. These screenings should include a yearly physical examination, biannual imaging of the liver, and a blood test for alpha-fetoprotein, a marker for tumors. If there is doubt about the presence of liver cancer, the definitive diagnosis is made by liver biopsy.
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