Caregiver's role

While many patients retain their independence for a while after being diagnosed with Alzheimer's disease, some need more help with daily activities. For others, the diagnosis may come after weeks or months of coping with symptoms that did not have a name. At some point, though, a caregiver is needed. A caregiver's role is multifaceted:

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• You help maintain the quality of life for your spouse, parent, family member, or friend with Alzheimer's disease.
• You become educated about symptoms, treatments, and the progression of the disease.
• You may keep track of appointments with the doctor, medication schedules, and exercise.
• You offer the love and support necessary to meet the challenges of Alzheimer's disease.

The most effective caregiver is well informed, prepared, and asks for help and support from all resources that are available.

There are some unique challenges that a patient with Alzheimer's disease confronts. First, the disease is quite variable. There may be times when the patient can function almost normally and then other times when the patient may be very dependent. This is a natural part of the disease. Also, the patient's response to medications may fluctuate. There is a natural tendency for a caregiver to suspect that the patient might be unnecessarily demanding or manipulative. The caregiver may see the patient functioning normally but then assume that the patient should always be able to function normally.

Depression is very much a part of the disease. Alzheimer's symptoms and disability can be made worse by depression, so it is important to recognize the signs and symptoms of depression and help your loved one seek treatment promptly.