Cardiomyopathy Related Links
More information on cardiomyopathy is available at these websites recommended by the U.S.News & World Report library:
Children's Cardiomyopathy Foundation (CCF)
CCF is a not-for-profit foundation that focuses on pediatric cardiomyopathy. The website includes general facts, causes, treatment, and tips for finding a doctor. It links to a discussion forum with eight available topics and a private E-mail discussion list for physicians and families.
National Heart Lung and Blood Institute
The National Institutes of Health provide information on the causes, symptoms, diagnosis, treatment, and prevention of the four types of cardiomyopathy–dilated, hypertrophic, and restrictive cardiomyopathy, and arrhythmogenic right ventricular dysplasia.
Cardiomyopathy Association (CMA)
CMA is a United Kingdom-based charity. The website includes links to information and common questions about the four types of cardiomyopathy.
St. Luke's Episcopal Hospital provides information on causes, symptoms, diagnosis, and treatment of three types of cardiomyopathy–dilated, hypertrophic, and restrictive. It also features an interactive illustration of the heart .
Arrhythmogenic Right Ventricular Dysplasia
From Johns Hopkins Medicine, this site covers ARVD exclusively. The patient Q&A discusses the symptoms and treatment of ARVD, and includes a list of associated genes. Diagnosis information includes diagnosis criteria and protocol for performing ECGs and MRIs.
The NIH maintains ClinicalTrials.gov, a research database of federally and privately supported clinical trials. For more information, see the clinical trials Resource Information page.