An expert whose work revolves around young cancer patients said she wholeheartedly endorsed the guide.
"This is a beautiful study that's really contributing in a significant way to bring a voice to adolescents and young adults for end-of-life care. It's filling an important need," said Dr. Joanne Wolfe, chief of pediatric palliative care at the Dana-Farber Children's Hospital Cancer Center in Boston.
"It's incredibly scary to imagine whether, or even how, to have these conversations with your children, and that comes from a sense of love and protection. Voicing My Choices can help them start that conversation," Wolfe said.
"The onus really is on the health care team to sit and listen to different members of the family. Adolescents worry and don't want to upset their parents, and parents don't want to upset their kids, and it's our responsibility to bring those conversations into the open. It can be an incredible relief for everyone once you get past those undisclosed worries," she said.
Read more from the Nemours Foundation about involving teens in health care decisions.
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