My 11 year old Daughter had brain surgery when she was 2. She was asymptomatic for 6 years without medication. About 3 years ago she started seizing again in her sleep. She is back on her meds. Friday night the 18th of May she had another seizure and she was on her meds and had not missed a dose. I had to administer the emergency anti-seizure medication for it cause it was 5 minutes or more. Took her to the Emergency room and her levels were within range. They had to increase her dosage. I like the baby monitor idea. I'd much rather have a seizure service dog. However, it is very expensive. If anyone knows where I can get one at a reasonable rate please let me know. I am desperate and I want my child to be able to have a life...Thank you and God Bless you all!
Rebecca Bradyof NC8:49PM May 22, 2012
We also bought a baby monitor. We teased my daughter when she was 14 that she was our baby. I do know how it felt not getting enough sleep.
Richof WI7:18PM May 22, 2012
I have three sons with epilepsy. The first one I ever saw my first born son was just a baby, I remember how frightened I was to bring him home from the hospital after his stay from the seizure. This wonderful woman, a support from the hospital said to me not to worry, to sleep it will all be alright that if anything were to happen I would be awaken by our angels. I do believe in God and His power and so I trusted this woman, her words guided me, and I will never forget her wisdom as it carried me through these last 35 years of parenting. God indeed sends an angel to wake us parents up, her words never failed me! Parents perhaps should buy a monitor like we do for our babies, and keep that in the childs room to help them as well.
Colleen Powellof FL2:42PM May 22, 2012
I started having seizures in the 10th grade and my mother slept with me or across the room from me for the longest. I just wanted to thank all the parents up here because we, the children, appreciate all of your help. 9x out of 10, my seizures would happen in my sleep. It does bother us, especially as we grow older, that our parents lose sleep listening out for us. My mother spent her mother's day weekend this year in the hospital with me as I was there for seizure testing so I may have more surgery. It does hurt us that you all aren't getting good sleep. Make sure you let your children know and feel they aren't a burden. It becomes a burden on US that WE'RE such a burden. A baby monitor is a good idea so that your child can feel more independent as they grow. Again i want to say thank you!!
Ashleyof VA10:44AM May 22, 2012
I can relate to this but what else can a parent do? I pray that all children outgrow this terrible condition.
Tia Whiteof MD10:39AM May 22, 2012
My son is 6 he has had epilepsy from 1yr old,he sleeps in our room with both our mattresses on the floor, he often ends up in our bed. We have to be very careful he never sleeps through the night and often has days of not sleeping at night at all but if he gets up and stands we run the risk of him seizing and dropping to the floor( he has drop seizures) this could be fatal. We have yet to find a bed to keep him safe . We honestly cant remember a night where we slept through the night with out him having endless seizures. Dosent matter though we would do anything to keep him safe and if that means we lose out on sleep then thats what it means<3
Nikyof NY10:23AM May 22, 2012
My daughter is 18 and I have her sleep with me because of seizures. Being a single Mom it takes a toll on me. But there is no other way to detect a seizure.
Dawnof AL8:58AM May 22, 2012
My parents had me in their bed to hear me when I had seizures.I had my first one at 8 months old.
Reneeof GA8:43AM May 22, 2012
If your childs rooms too small or they are under invest in a monitor Toys r us sells one that has a little screen like a cell phone its about $99.00 I bought one it works great you can turn the volume all the way up. If your child has night seizures and staying in their room isn't an option they are a huge help to get you through your 2:00 sm jaunt doen the hall work out...lol Its good to know Im not the only parent sleep deprived lol at my childs Eegs...lol
Michelle of PA8:39AM May 22, 2012
Did the parents's sleeping in the same room as the child(ren) have a negative/positive effect on the epileptic child(ren)'s sleep as well? Knowing that lack of sleep is also one of the triggers of an epileptic seizure, this might also be taken into consideration.
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Rebecca Brady of NC 8:49PM May 22, 2012
Rich of WI 7:18PM May 22, 2012
Colleen Powell of FL 2:42PM May 22, 2012
Ashley of VA 10:44AM May 22, 2012
Tia White of MD 10:39AM May 22, 2012
Niky of NY 10:23AM May 22, 2012
Dawn of AL 8:58AM May 22, 2012
Renee of GA 8:43AM May 22, 2012
Michelle of PA 8:39AM May 22, 2012
Dee Dee of LA 8:36AM May 22, 2012