My 13 year old son has Nethertons Syndrom and not many doctors around Cleveland Ohio can help him. I don't think that much research has been done on this syndrom and we hear that its really rare.
My husband and I was wondering about stem cells and if that could be possible to help him and others with this condition. We would like to have one more baby but we are very scared. It's been very hard for our son and it's very hard to watch him go through this daily. We are always waiting for that miracle.
Tonyaof OH4:49PM November 04, 2010
I'm 25 years old, healthy male who was told recently that I have the Huntington Gene, Whats the realistic chance this could benefit me before its to late? I live in Washington, and there doesn't seem to be much support or information out here for that sort of thing, or just an overall lack of care from the doctors out here about it.
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Tonya of OH 4:49PM November 04, 2010
Stephen of WA 12:26AM October 22, 2010