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Jean Bennett and Albert Maguire: Gene Therapy to Reverse Near-Blindness

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My name is Cheri Kerr, I was told my 7 month old son, Alexander Pohutski, may have LCA. We had a ERG and a MRI both came back normal. I was told this did not rule out LCA. Alex has nystagmus, and the ophthalmologist said he is only seeing approximately up to 2 ft away. I was told we may not know if he has the disease for another year. Is there a test to find out for sure if he has this or not? Any information would be greatly appreciated.

cheri kerr of MI 3:17PM November 17, 2011

My 16 year old son has been diagnosed with Knobloch and now possibly Stargardt's. His retinas are unfortunately going through atrophy. Any hope to stop the atrophy or grow a new retina? He has already had dual cataract surgery and has +6 IOL's. He also had dual vitrecotmies. Left retina tore slightly during the procedure. Right retina very weak and repaired. His vision at best is maybe 20/400 in the right eye and not determined in the left as it is worse than 20/500. He has been accepted in to a clinical trial at NIH in Bethesda, MD beginning in August, 2011.

Carol Lynn Beninca of VA 12:16PM June 09, 2011

dear doc
you are doing great, my son souban is suffering from Leber's Congenital Amaurosis since birth, where as my all other kids and us (parents) are ok. How i can approach u doc for my son tratment, may be he can also see the world one day. please reply soon.

farooqrahimawan of NY 11:22AM December 29, 2010

Good day
I am fromSouth Africa and have seen your amazing therapy on our local tv and was wondering if this treatment will help if you have COLOBOMA?
Thank you.

TESSA 8:55AM October 04, 2010

Could this also be used for Cone Dystrophy? Looking for help.....

Ellen of PA 11:11AM April 27, 2010

Hello
Yamyshvd Baayn new method (injection of genes) to treat this disease?
Method for the treatment you know?(for COLOBOMA)
Please help me
Thank you and good luck

mohajeri of AL 2:17AM March 08, 2010

Hello
Yamyshvd Baayn new method (injection of genes) to treat this disease?
Method for the treatment you know?(for COLOBOMA)
Please help me
Thank you and good luck

mohajeri of AL 2:17AM March 08, 2010

Hello
Yamyshvd Baayn new method (injection of genes) to treat this disease?
Method for the treatment you know?(for COLOBOMA)
Please help me
Thank you and good luck

mohajeri of AL 2:17AM March 08, 2010

My son who is eleven has just been diagnosed with Cone Dystrophy a disease we had never heard of until now. He is been treated at Necker Hospital for children in Paris where his doctors have been very negative about any treatment in the near future. It is heart breaking to see my son losing his sight. Could your research eventually help him? Thank you for all help.
Susan Doat

DOAT 10:10AM February 26, 2010