I have my son 5 years old with light autism. more visible speach and behave, this information help me to understand i have to keep looking for more and more information to help him.........
Paula /rodarteof CA9:49PM September 21, 2011
My son's DAN! doctor prescribed the methyl-B12 in addition to come other medications for correcting some gut issues. Lo and behold, IT WORKS! I was a skeptic too, but since starting the B12 alone (prior to the gut meds interventions), my son's speech became more clear, his attention increased, and he really started to come out of his own little world. I'm so very thankful that his doctor put us on the right track with this God given gift!!
Meridithof VA1:24AM August 07, 2011
Sorry, the link I included earlier was incorrect.
Here is the link to an article on methyl-B12 and autism.
Cyanocobalamin b12 is available as a patch, which seems a much more convenient, inexpensive and pain-free alternative to intramuscular injections.
Here is an interesting article on methyl-b12 and autism.
http://bit.ly/heVxK0
Linda Socherof CA11:27AM January 18, 2011
The MIND Institute at UC Davis Med School is conducting large scale longitudinal study on autism. On of them is the Autism Phenome Project headed by Dr. David Amaral who I believe is also President of INFAR, a major group, probably the largest group in the world, of autism researchers.
Dr. Amaral gave a talk for the parents and some things REALLY ought to be told to the public:
1. They have identified an antibody pattern in mothers, of antibodies to fetal brain, which has NEVER been found in the mothers of normal children. It looks like, if you have this pattern, you are going to have an autistic child. All mothers of one autistic child, if they are going to have another kid or might have another, should get tested for this pattern (that is not Dr. Amaral's recommendation, it's mine, but if the pattern is 100% tied to autism, doesn't it make sense? Not sure how you get the test however without being in APP)
2. We've been told kids with autism have abnormally large brains. According to APP, they do, BUT, it's only a subset, I think it was about 15%. Somewhere around that same percentage have abnormally small brains. Most autistic kids do not have abnormally large or small brains, at least, not their entire lives, this varies with age also.
3. Some kids with autism have antibodies to their own brains, but surprisingly, a significant percentage of normal kids have antibodes to their own brains. However, preliminary data indicate normal kids tend to lose the autoantibodies with age, whereas autistics may not. At first they thought it was a very high percentage of autistics with brain autoantibodies but found out as the kids aged the normals lost theirs.
4. Some implicatons for treatment in the very long term: IL-10 is abnormal in some autistics. PECAM is abnormal in some. There may be ways to regulate these molecules back to normal in the autistics, however, Dr. Amaral does not say that the abnormalities are causative of anything, AND, what's more, abnormalities could be part of a beneficial process. Cytokines are a minefield therapeutically anyway from what I'm told by a molecular biologist friend.
5. Dr. Amaral and many other researchers strongly emphasize the extreme heterogeneity of autism. There are probably dozens of causes of what is called autism by the psychologists. Countless ways for the brain, the most complex thing known to man, to malfunction. You have to soldier on and try to get information on YOUR kid as much as possible. Your kid's autism may have nothing to do with another kids.
All the people at MIND have been a great pleasure to work with, I am very impressed by them and grateful to them, but if you put your kid in, it's probably not realistic to expect any treatment any time soon, perhaps ever. On the other hand, research studies are the best chance you have.
Steve White of CA2:55PM August 08, 2010
I'm wanting to start my twins on b 12 methy. Would like to find a pediatric Dr. who does this in the Atl,GA area or Marietta GA any where close by to Canton. Anyone have any ideas?
Angieof GA6:54PM May 30, 2010
Is anyone listening out there? Vitamin D is the ULTIMATE ant inflammatory and it seems linked to just about every human misery, and I mean that literally. Read The Vitamin D Theory of Autism as proposed by Dr. John Cannel. In the meantime supplementing to at least 50 ng/ml- blood serum- can do no harm and certainly prevent a lifetime of misery. Link to The Vitamin D Theory of Autsim: http://www.vitamindcouncil.org/health/autism/
Chuckof MD5:44PM February 09, 2010
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Michael shihof CA5:33PM February 09, 2010
I don't pretend to know anything about the autism -> vaccination link, and I pray that none actually exists. But, this study and the anecdotal success documented through the use of methyl b-12 strongly suggest oxidation and methylation are the major culprits leading to damage in sperm, ovum, and zygote, which suggests ongoing disfunction in an affected child's cell function. Methyl b-12 promotes methionine [syntase] reductase (EC 1.16.1.8), which is an enzyme that catalyzes hydroxyl radicals, and may be related to the the methyl donors: S-adenosyl-L-methionine (SAMe) In addition to Omega 3's, has anyone used SAMe in conjunction with the methyl b12 injections? What about other antioxidant enzyme induction methodologies as adjunctive nutritional therapies : (1)Resveratrol and/or (2)isoflavone rich (whole) soy protein with probiotics?
Robert Kavanaughof CA4:57PM February 09, 2010
My daughter was developing beyond the milestones you find in baby books. At twelve months she was singing "twinkle twinkle little star". She would stare at me intensely in the eyes as I rocked her to sleep. When she was vaccinated with the MMR she started regressing. Slowly at first and progressively worse as time went on until eventually her body went limp, soft, lost her balance, made no eye contact and lost her speech.When she was 2 years old, I found our biomedical paediatrician and he started treatment. We took her off cows milk immediately. I gave her almond milk instead when I put her down for her nap. When she woke up she made eye contact with me. I couldn't believe my eyes. Over the next 7 days she regained eye contact to some degree, I had to stop the car and pull over (totally rattled) when she sang 3 nursery rhymes in a row 4 days after being taken off milk. Somehow they were stored in her mind - she just couldn't get them out. We have been following the biomedical protocol for almost 12 months. My daughter is hugging, kissing, smiling, making eye contact and starting to talk appropriately. We have just started on Methyl B12 injections and I am looking forward to the results. I feel sad that she was robbed of her toddler time. It should have been fun for her but instead she was a stressed out, fearful little girl. I have great hopes and aspirations for her future and hope to help her to attain the brilliant life she was destined to have. I don't need scientific results, no one knows more than me - her mother - what caused her regression and what in fact is bringing her back. Ignore the cynics. Forge your own path and heal your children.
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Paula /rodarte of CA 9:49PM September 21, 2011
Meridith of VA 1:24AM August 07, 2011
Linda Socher of CA 11:30AM January 18, 2011
Linda Socher of CA 11:27AM January 18, 2011
Steve White of CA 2:55PM August 08, 2010
Angie of GA 6:54PM May 30, 2010
Chuck of MD 5:44PM February 09, 2010
Michael shih of CA 5:33PM February 09, 2010
Robert Kavanaugh of CA 4:57PM February 09, 2010
Lori 8:16AM January 30, 2010