Jett Travolta and Kawasaki Syndrome

Reader Comments

Back to blog

Could be this blog's best read I have read!!

cigarette électrique of AL 6:06PM January 27, 2012

This might be your best read on here!!!

news-mmo.com of AL 3:25AM October 27, 2011

My friends son was diagnosed with Kawasaki syndrome years ago, and his doctor said he got it from his mom shampooing the carpets. That since children are low to the ground and play on the floor they are prone to it. He didn't have any more problems with it after that first episode. Maybe more has been learned about it since then. Sorry to all who suffer with it.

Teresa Ann Coyne of AZ 9:32AM October 12, 2010

when i was 14 i had the symptoms of kawasaki disease. at first i was just sick like a cold. then later i started getting really tired and my body ached. my mom toook me to the dr and they checked me for mono., scarlet fevor, and the flu. All of those came back as fine so they sent me home and told me to take tylnol and cold medicine. azs time went on it just got worst and my tonsles enlarged and i had large white pus bags and cuts in my throat. then my hands and feet were plealing and thats when i was the deadest. i couldnt move, my mom carried me to the bathroom to take baths and to use the restroom. it was really hard. i had been out of school for 3 months or so by now.... well in the end i was told that i had kawasaki disease 3 weeks before my 15th birthday. they gave me the medicine and explained to me that if i have a reaction to the medicin i would die from it so my mom had a to sign a concent form for me to have it. after gettin the medicine i dont remember anything but having a headache that was progressivly getting worst. my mom explained to me that i had a reaction to the medicine and was screaming and that i was complainiing about every thing being to loud and that i tried to walk out of the hospital. i am now 19 years old and last month i just had my tonsils removed which have been swolen from the disease and the pigment in my left eye is still messed up. i havent checked the records lately but in 2004-2005 i was the second oldest to have the isease. so i feel really bad for the travolta family because i was there. and i know how hard it ishave to pplann a funeral because i planned my own. and for the comments that this needs to be studied more i agree complately.

ashley millican of IA 5:13PM October 03, 2009

hello,

i am a filipino and i have a 4yr old son who just had kawasaki disease by march 2008. it has been 1yr now that he had the disease. he used to have recurrent swelling of tonsils by almost every month even if he had'nt eaten or drank something that could make his tonsils swell. by start or march last tear, he had high grade fever and his pedia doctor gave him antibiotics...but the fever persisted. i had him admitted to our emergency hospital and stayed there for 7 days...by then i noticed that his lips are red that even his gums and tongue are bleeding if i cleaned them. then i noticed rashes on his neck and back and the eyes are red too. the jugular vein has been prominent to the eyes and i suspected he has a heart involvement already since the fever still persists.. all the symptoms i presented to our doctors but they were'nt able to detect that it was kawasaki disesase. 2 days before we decided to transfer him to another hospital i noticed that he has abdominal distentions and he's turning into jaundice. he's had edema on his whole body and he's getting weaker as days pass by. so by 7th day we transferred him to another hospital and the doctor we have been referred to immediately diagnosed him with kawasaki disease. that was the time of my life that i felt so helpless of all the helpless. they had taken blood tests on him with very high ESR..x-rays and 2d echo with perfusions on his heart wall and abnormalities on his coronary artery. the liver was so inflamed and so big on its normal size...they gave him ceftriaxone(rocephine) by iv. then a day after he was given IVIG..5hours the infusion started my sons fever stopped miraculously. and he was discharged after 4 days after having IVIG.. now my son is already cured and by God's mercy he is back to his normal activities. we will be back for his repeat 2d echo by may this year to be sure the heart is cleared completely. but what i've observed is that after the disease he's got allergies like on foods like shrimps, crabs, eggs and beans..and with the sudden change of climates and he cannot even tolerate eating sweet and spicy foods and drinking cold beverages because he easily get inflammations on his tonsils and throat.

leia of MA 7:39AM March 30, 2009

hello,

i am a filipino and i have a 4yr old son who just had kawasaki disease by march 2008. it has been 1yr now that he had the disease. he used to have recurrent swelling of tonsils by almost every month even if he had'nt eaten or drank something that could make his tonsils swell. by start or march last tear, he had high grade fever and his pedia doctor gave him antibiotics...but the fever persisted. i had him admitted to our emergency hospital and stayed there for 7 days...by then i noticed that his lips are red that even his gums and tongue are bleeding if i cleaned them. then i noticed rashes on his neck and back and the eyes are red too. the jugular vein has been prominent to the eyes and i suspected he has a heart involvement already since the fever still persists.. all the symptoms i presented to our doctors but they were'nt able to detect that it was kawasaki disesase. 2 days before we decided to transfer him to another hospital i noticed that he has abdominal distentions and he's turning into jaundice. he's had edema on his whole body and he's getting weaker as days pass by. so by 7th day we transferred him to another hospital and the doctor we have been referred to immediately diagnosed him with kawasaki disease. that was the time of my life that i felt so helpless of all the helpless. they had taken blood tests on him with very high ESR..x-rays and 2d echo with perfusions on his heart wall and abnormalities on his coronary artery. the liver was so inflamed and so big on its normal size...they gave him ceftriaxone(rocephine) by iv. then a day after he was given IVIG..5hours the infusion started my sons fever stopped miraculously. and he was discharged after 4 days after having IVIG.. now my son is already cured and by God's mercy he is back to his normal activities. we will be back for his repeat 2d echo by may this year to be sure the heart is cleared completely. but what i've observed is that after the disease he's got allergies like on foods like shrimps, crabs, eggs and beans..and with the sudden change of climates and he cannot even tolerate eating sweet and spicy foods and drinking cold beverages because he easily get inflammations on his tonsils and throat.

leia of MA 7:33AM March 30, 2009

hello,

i am a filipino and i have a 4yr old son who just had kawasaki disease by march 2008. it has been 1yr now that he had the disease. he used to have recurrent swelling of tonsils by almost every month even if he had'nt eaten or drank something that could make his tonsils swell. by start or march last tear, he had high grade fever and his pedia doctor gave him antibiotics...but the fever persisted. i had him admitted to our emergency hospital and stayed there for 7 days...by then i noticed that his lips are red that even his gums and tongue are bleeding if i cleaned them. then i noticed rashes on his neck and back and the eyes are red too. the jugular vein has been prominent to the eyes and i suspected he has a heart involvement already since the fever still persists.. all the symptoms i presented to our doctors but they were'nt able to detect that it was kawasaki disesase. 2 days before we decided to transfer him to another hospital i noticed that he has abdominal distentions and he's turning into jaundice. he's had edema on his whole body and he's getting weaker as days pass by. so by 7th day we transferred him to another hospital and the doctor we have been referred to immediately diagnosed him with kawasaki disease. that was the time of my life that i felt so helpless of all the helpless. they had taken blood tests on him with very high ESR..x-rays and 2d echo with perfusions on his heart wall and abnormalities on his coronary artery. the liver was so inflamed and so big on its normal size...they gave him ceftriaxone(rocephine) by iv. then a day after he was given IVIG..5hours the infusion started my sons fever stopped miraculously. and he was discharged after 4 days after having IVIG.. now my son is already cured and by God's mercy he is back to his normal activities. we will be back for his repeat 2d echo by may this year to be sure the heart is cleared completely. but what i've observed is that after the disease he's got allergies like on foods like shrimps, crabs, eggs and beans..and with the sudden change of climates and he cannot even tolerate eating sweet and spicy foods and drinking cold beverages because he easily get inflammations on his tonsils and throat.

leia of MA 7:29AM March 30, 2009

Will they be doing an autopsy? He might have had an aneurysm?

of 10:32PM January 22, 2009

Hello,

I thought you would want to update your article. One of the symptoms following fever and rash is the peeling of the skin on the finger tips and toes. My son at six months old was diagnosed with Kawasaki Disease. He first had a high fever and an abdominal rash. Being a first time parent I took him to the emergency room. His fever was gone by the time the doctor saw him. They ran some tests and sent us home and told us to monitor his temperature. When we got home there was a message on the answering machine to bring him back to the hospital. To this day I don't know if they called because of their test results. What I do know is that by the grace of God or maybe it was fait, one of the young doctor's on call at the hospital that night had studied Kawasaki Syndrome and had a feeling. He told us about the disease and told us the syptoms to watch for which was a fever (that can fool you by going away), a rash, peeling of the fingers and toes, blood clots etc... When the doctor noticed the skin on my son's finger he was convinced. My son was in the hospial for a week. He had a gammaglobulin infusion. He was treated at home with asparin for 2 months and we were told not to let anyone around him who was ill because of his weakened immune system caused by the disease. He then had an ecocardiogram which came back normal. My son is now 12. There is no known cause for the disease and it has not been around long enough to know if there are re-occurances. The disease is hard to diagnose and I think Dr. Peter Brar was in the right place at the right time.

Stacey Barker 4:40PM January 17, 2009

Hello,

I thought you would want to update your article. One of the symptoms following fever and rash is the peeling of the skin on the finger tips and toes. My son at six months old was diagnosed with Kawasaki Disease. He first had a high fever and an abdominal rash. Being a first time parent I took him to the emergency room. His fever was gone by the time the doctor saw him. They ran some tests and sent us home and told us to monitor his temperature. When we got home there was a message on the answering machine to bring him back to the hospital. To this day I don't know if they called because of their test results. What I do know is that by the grace of God or maybe it was fait, one of the young doctor's on call at the hospital that night had studied Kawasaki Syndrome and had a feeling. He told us about the disease and told us the syptoms to watch for which was a fever (that can fool you by going away), a rash, peeling of the fingers and toes, blood clots etc... When the doctor noticed the skin on my son's finger he was convinced. My son was in the hospial for a week. He had a gammaglobulin infusion. He was treated at home with asparin for 2 months and we were told not to let anyone around him who was ill because of his weakened immune system caused by the disease. He then had an ecocardiogram which came back normal. My son is now 12. There is no known cause for the disease and it has not been around long enough to know if there are re-occurances. The disease is hard to diagnose and I think Dr. Peter Brar was in the right place at the right time.

Stacey Barker 4:38PM January 17, 2009

Add Your Thoughts
Your comment will be posted immediately, unless it is spam or contains profanity. For more information, please see our Comments FAQ.

Back to blog

On Parenting

On Parenting

Parenting may be an art, but there's a lot of science behind raising healthy, thriving children. Contributing Editor Nancy Shute explores the latest discoveries and developments affecting children's health and parenting. Send her your comments and questions at onparenting@usnews.com.

Health Check

advertisement

Featured Videos

Depression

Learn how to recognize the symptoms.

Suffering from Migraines?

Know your triggers to prevent a migraine meltdown.

Rheumatoid Arthritis

Rheumatoid Arthritis can affect the young and old alike.

advertisement