I went , it saved my life. I have talked to many that followed me, all had a 25 to 50 percent drop in heart pressures. It works. I'm 23 month out. The reason we are not on the fast tract is the money is not right for large drug companies.No profit in healthy people.
Teddof CA2:53PM June 14, 2012
Where can I find doctors in the Denver area that use stem cell therapy and may be willing to use it for pulmonary hyptertension?
Deborahof CO9:15PM January 17, 2012
I have a 3 year old diagnosised with VSD and Pulmonary Hypertension. Where can I find more out about the DR research and if anyone else has any other ideas please please let me know!!!
Daveof MI5:05PM October 21, 2010
I have been just diagnosed with Pulmonary Hypertension and have been looking at the different meds available to us. My first appointment with the pulmonologist will be on the 29th. I also have read about stem cell treatments going on. They were in the Dominican Republic, but have now moved to Panama. Also there is new news that came out around August 12th 2010 about 2 drugs called DCA and TMZ that actually regress PH, instead of just dialating the blood vessels in the lungs. Of course the clinical trials for these drugs are happening in the UK and Canada. My concern is how long it will be before any of this is available to us. This country's bureacracy is awful, and someone will have to profit from it in a big way. I would like to be able to change this too. My prayers go out to every one dealing with this. I am asking God to open doors that are impossible for us to open by ourselves. God Bless all of you.
Vickie Risingerof TX8:09PM September 11, 2010
i have sci and looking for stem cell treatment anyone know the best place to go to have it done?? please advise thanks
paulof MD8:17AM March 24, 2010
I went , it saved my life. I have talked to many that followed me, all had a 25 to 50 percent drop in heart pressures. It works. I'm 23 month out. The reason we are not on the fast tract is the money is not right for large drug companies.No profit in healthy people.
karlof GA6:05PM January 17, 2010
What drives me crazy is no one seems interested in fast tracking something that has the most promise to CURE Pulmonary Hypertension. Everyone should be up in arms over this and be asking why?? More time wasted places more treatment revenue to the pharmaceutical industry along with FDA's help. I suggest the lust for money & control drives these decisions.
Dr, patients, and yes even our government if concerned for human life should stop the corruption, manipulation of how we get treatments & cures to the general public. Really getting tired of the bureacracy when other countries are already moving on with clinical trials...none here in the US by the way.
Please write if anyone knows a way to change this. Maybe in numbers we can make a difference.
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Tedd of CA 2:53PM June 14, 2012
Deborah of CO 9:15PM January 17, 2012
Dave of MI 5:05PM October 21, 2010
Vickie Risinger of TX 8:09PM September 11, 2010
paul of MD 8:17AM March 24, 2010
karl of GA 6:05PM January 17, 2010
Tom of TX 10:11AM September 07, 2009
9892989315 of IN 2:34AM August 20, 2009