Jett Travolta and Kawasaki Syndrome
Reader Comments
had it!
when i was 14 i had the symptoms of kawasaki disease. at first i was just sick like a cold. then later i started getting really tired and my body ached. my mom toook me to the dr and they checked me for mono., scarlet fevor, and the flu. All of those came back as fine so they sent me home and told me to take tylnol and cold medicine. azs time went on it just got worst and my tonsles enlarged and i had large white pus bags and cuts in my throat. then my hands and feet were plealing and thats when i was the deadest. i couldnt move, my mom carried me to the bathroom to take baths and to use the restroom. it was really hard. i had been out of school for 3 months or so by now.... well in the end i was told that i had kawasaki disease 3 weeks before my 15th birthday. they gave me the medicine and explained to me that if i have a reaction to the medicin i would die from it so my mom had a to sign a concent form for me to have it. after gettin the medicine i dont remember anything but having a headache that was progressivly getting worst. my mom explained to me that i had a reaction to the medicine and was screaming and that i was complainiing about every thing being to loud and that i tried to walk out of the hospital. i am now 19 years old and last month i just had my tonsils removed which have been swolen from the disease and the pigment in my left eye is still messed up. i havent checked the records lately but in 2004-2005 i was the second oldest to have the isease. so i feel really bad for the travolta family because i was there. and i know how hard it ishave to pplann a funeral because i planned my own. and for the comments that this needs to be studied more i agree complately.
kawasaki symptoms
hello,
i am a filipino and i have a 4yr old son who just had kawasaki disease by march 2008. it has been 1yr now that he had the disease. he used to have recurrent swelling of tonsils by almost every month even if he had'nt eaten or drank something that could make his tonsils swell. by start or march last tear, he had high grade fever and his pedia doctor gave him antibiotics...but the fever persisted. i had him admitted to our emergency hospital and stayed there for 7 days...by then i noticed that his lips are red that even his gums and tongue are bleeding if i cleaned them. then i noticed rashes on his neck and back and the eyes are red too. the jugular vein has been prominent to the eyes and i suspected he has a heart involvement already since the fever still persists.. all the symptoms i presented to our doctors but they were'nt able to detect that it was kawasaki disesase. 2 days before we decided to transfer him to another hospital i noticed that he has abdominal distentions and he's turning into jaundice. he's had edema on his whole body and he's getting weaker as days pass by. so by 7th day we transferred him to another hospital and the doctor we have been referred to immediately diagnosed him with kawasaki disease. that was the time of my life that i felt so helpless of all the helpless. they had taken blood tests on him with very high ESR..x-rays and 2d echo with perfusions on his heart wall and abnormalities on his coronary artery. the liver was so inflamed and so big on its normal size...they gave him ceftriaxone(rocephine) by iv. then a day after he was given IVIG..5hours the infusion started my sons fever stopped miraculously. and he was discharged after 4 days after having IVIG.. now my son is already cured and by God's mercy he is back to his normal activities. we will be back for his repeat 2d echo by may this year to be sure the heart is cleared completely. but what i've observed is that after the disease he's got allergies like on foods like shrimps, crabs, eggs and beans..and with the sudden change of climates and he cannot even tolerate eating sweet and spicy foods and drinking cold beverages because he easily get inflammations on his tonsils and throat.
kawasaki symptoms
hello,
i am a filipino and i have a 4yr old son who just had kawasaki disease by march 2008. it has been 1yr now that he had the disease. he used to have recurrent swelling of tonsils by almost every month even if he had'nt eaten or drank something that could make his tonsils swell. by start or march last tear, he had high grade fever and his pedia doctor gave him antibiotics...but the fever persisted. i had him admitted to our emergency hospital and stayed there for 7 days...by then i noticed that his lips are red that even his gums and tongue are bleeding if i cleaned them. then i noticed rashes on his neck and back and the eyes are red too. the jugular vein has been prominent to the eyes and i suspected he has a heart involvement already since the fever still persists.. all the symptoms i presented to our doctors but they were'nt able to detect that it was kawasaki disesase. 2 days before we decided to transfer him to another hospital i noticed that he has abdominal distentions and he's turning into jaundice. he's had edema on his whole body and he's getting weaker as days pass by. so by 7th day we transferred him to another hospital and the doctor we have been referred to immediately diagnosed him with kawasaki disease. that was the time of my life that i felt so helpless of all the helpless. they had taken blood tests on him with very high ESR..x-rays and 2d echo with perfusions on his heart wall and abnormalities on his coronary artery. the liver was so inflamed and so big on its normal size...they gave him ceftriaxone(rocephine) by iv. then a day after he was given IVIG..5hours the infusion started my sons fever stopped miraculously. and he was discharged after 4 days after having IVIG.. now my son is already cured and by God's mercy he is back to his normal activities. we will be back for his repeat 2d echo by may this year to be sure the heart is cleared completely. but what i've observed is that after the disease he's got allergies like on foods like shrimps, crabs, eggs and beans..and with the sudden change of climates and he cannot even tolerate eating sweet and spicy foods and drinking cold beverages because he easily get inflammations on his tonsils and throat.
kawasaki symptoms
hello,
i am a filipino and i have a 4yr old son who just had kawasaki disease by march 2008. it has been 1yr now that he had the disease. he used to have recurrent swelling of tonsils by almost every month even if he had'nt eaten or drank something that could make his tonsils swell. by start or march last tear, he had high grade fever and his pedia doctor gave him antibiotics...but the fever persisted. i had him admitted to our emergency hospital and stayed there for 7 days...by then i noticed that his lips are red that even his gums and tongue are bleeding if i cleaned them. then i noticed rashes on his neck and back and the eyes are red too. the jugular vein has been prominent to the eyes and i suspected he has a heart involvement already since the fever still persists.. all the symptoms i presented to our doctors but they were'nt able to detect that it was kawasaki disesase. 2 days before we decided to transfer him to another hospital i noticed that he has abdominal distentions and he's turning into jaundice. he's had edema on his whole body and he's getting weaker as days pass by. so by 7th day we transferred him to another hospital and the doctor we have been referred to immediately diagnosed him with kawasaki disease. that was the time of my life that i felt so helpless of all the helpless. they had taken blood tests on him with very high ESR..x-rays and 2d echo with perfusions on his heart wall and abnormalities on his coronary artery. the liver was so inflamed and so big on its normal size...they gave him ceftriaxone(rocephine) by iv. then a day after he was given IVIG..5hours the infusion started my sons fever stopped miraculously. and he was discharged after 4 days after having IVIG.. now my son is already cured and by God's mercy he is back to his normal activities. we will be back for his repeat 2d echo by may this year to be sure the heart is cleared completely. but what i've observed is that after the disease he's got allergies like on foods like shrimps, crabs, eggs and beans..and with the sudden change of climates and he cannot even tolerate eating sweet and spicy foods and drinking cold beverages because he easily get inflammations on his tonsils and throat.
Aneurysm?
Will they be doing an autopsy? He might have had an aneurysm?
kawasaki symptons
Hello,
I thought you would want to update your article. One of the symptoms following fever and rash is the peeling of the skin on the finger tips and toes. My son at six months old was diagnosed with Kawasaki Disease. He first had a high fever and an abdominal rash. Being a first time parent I took him to the emergency room. His fever was gone by the time the doctor saw him. They ran some tests and sent us home and told us to monitor his temperature. When we got home there was a message on the answering machine to bring him back to the hospital. To this day I don't know if they called because of their test results. What I do know is that by the grace of God or maybe it was fait, one of the young doctor's on call at the hospital that night had studied Kawasaki Syndrome and had a feeling. He told us about the disease and told us the syptoms to watch for which was a fever (that can fool you by going away), a rash, peeling of the fingers and toes, blood clots etc... When the doctor noticed the skin on my son's finger he was convinced. My son was in the hospial for a week. He had a gammaglobulin infusion. He was treated at home with asparin for 2 months and we were told not to let anyone around him who was ill because of his weakened immune system caused by the disease. He then had an ecocardiogram which came back normal. My son is now 12. There is no known cause for the disease and it has not been around long enough to know if there are re-occurances. The disease is hard to diagnose and I think Dr. Peter Brar was in the right place at the right time.
kawasaki symptons
Hello,
I thought you would want to update your article. One of the symptoms following fever and rash is the peeling of the skin on the finger tips and toes. My son at six months old was diagnosed with Kawasaki Disease. He first had a high fever and an abdominal rash. Being a first time parent I took him to the emergency room. His fever was gone by the time the doctor saw him. They ran some tests and sent us home and told us to monitor his temperature. When we got home there was a message on the answering machine to bring him back to the hospital. To this day I don't know if they called because of their test results. What I do know is that by the grace of God or maybe it was fait, one of the young doctor's on call at the hospital that night had studied Kawasaki Syndrome and had a feeling. He told us about the disease and told us the syptoms to watch for which was a fever (that can fool you by going away), a rash, peeling of the fingers and toes, blood clots etc... When the doctor noticed the skin on my son's finger he was convinced. My son was in the hospial for a week. He had a gammaglobulin infusion. He was treated at home with asparin for 2 months and we were told not to let anyone around him who was ill because of his weakened immune system caused by the disease. He then had an ecocardiogram which came back normal. My son is now 12. There is no known cause for the disease and it has not been around long enough to know if there are re-occurances. The disease is hard to diagnose and I think Dr. Peter Brar was in the right place at the right time.
Kawasaki Disease
The Travolta's must be in so much pain, my condolences to their family.
Our daughter had a long course of Kawasaki Disease and ended up with giant coronary aneurysms. However, there is evidence that shows aneurysms can be in other locations and there have been rare reports of seizures associated with KD. The whole body goes through an intense vascular inflammation and they have just started doing long term studies on not only the arteries, but the heart muscle itself. The micro-vasculation system apparently is scarred and over time, things like myocardial fibrosis and cardiomyopathy may occur. There have been many reports of behavioral problems with KD kids after the KD fevers have "burned out". It would make sense that the brain vascular system would also have an extreme inflammation that might lead to future problems. When KD happens the capillaries in the eyes of the child turn bright red, that means the inflammation is also carried throughout the body in tiny vessels. It is a terribly difficult disease to understand and for a parent it can be frustrating to know that there is no known cause. The fevers of KD need to be treated within 10 days for IVIG to work at its best, however this does not prevent aneurysms in all children, but does cut down the chances from 25% to 5%. Our daughter takes coumadin and aspirin to prevent clotting in her aneurysms. More research needs to be done and supported. I truly believe that by studying KD, the adult population could find answers to adult heart disease. Because it is so hard to diagnose the doctors are finding that it is not as rare as everyone thinks it is and there are many, many undiagnosed cases of KD each year. The most common misdiagnosis are a "virus" or Scarlet Fever. With genetic testing, it looks as though a certain genetic link may be evident that allows a certain "trigger" such as a virus, mold, bacteria, chemical, etc. to start the complex cascade of events that makes up KD. There are pretty evident signs to a parent with the long fevers, red eyes, rash, etc. The worst problem is that there is not enough awareness of KD, even with pediatricians. I had to get on the internet and locate the information about KD and present it to our pediatrician. Even then, she did not totally believe me. If your child has KD, you need to get them to a Children's Hospital and to a pediatric cardiologist ASAP for the very best treatment. Sometimes an Infectious Disease specialist needs to be called in for consultation. Parents often take their child back and forth to the doctor waiting for a diagnosis that fits their child's symptoms,; this wastes the precious time of that 10 day window of treatment when IVIG usually works for the child. It is difficult to know if the Jett's seizures had anything to do with his having KD as a toddler, but I wouldn't totally rule it out. I doubt they will ever know for sure. They sound like they did the best they could for Jett, under the circumstances.
Kawasaki Syndome
My son had Kawasaki when he was three years old..He is now 11 years old....No complications but if it [was not treated it definitely would have caused heart problems etc. I do think the high fevers affected him after because his cognitive development slowed down..That is a mother speaking...Did the young Travolta child receive the gamma gloubin when he was diagnosed with Kawasaki?.....
Setting Record Straight
Thank you, M.D. from MA, for setting the record straight. Finally, someone with a true medical background weighed in with the real facts. When all is said and done, what really matters is was this child getting proper treatment for the proper diagnosis or not? If the parents were in denial about his illness, due to their religion, none of us would want to be in their shoes. All the money in the world won't fix that.
