Finding Effective Treatment for Your Chronic Pain

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Diabetes, Ruptured Colon, MRSA, Fibro Myalgia, poor vision, Memory Problems

I have all of the above problems that began once my colon ruptured and I acquired MRSA from the ruptered Colon. The Pain is unbearable most of the time. Yes, I have a "Fist Full" of controlled medications I must take for the excrutinating pain I suffer. I do not believe I will ever completely recover from all of the above. I am very concerned, because my memory is getting very bad. I am 67 and realize it can be authoritice as well. I have two other people who are disabled in our home. I still care for them. I fear that the time is coming that I will be doing good to just wake up soon. The cost of the medications are outrageous. We get Social Security, but by the time we pay the co-pay we have spent close to $700 to $1,ooo monthly. We never have enough money left for the foods we need to eat.

We moved to a smaller apartment, thinking we would save $500 for food monthly. However, the electricity, water, pharmacy, physicians and the fact that I cannot cook often has quickly taken the savings and we rarely can afford the food, plus I am so sick I have trouble preparing it. I worked for fifty years before all of this happened.

Do you have suggestions on how to fix the situation of money and the cost of food, Pharmacy, etc. Everyone is increasing the cost, yet our Social Security does not incerase as much as the escalating cost for what we need. We are not the only family like this. Many others are probably much worse.

I pray for the leaders of our nation to open their eyes to the fact that people like us need help.

Please give me advise on what to do.

BACK TO BASICS

I was in severe chronic pain for 4 years in which I was diagnosed by different doctors with fibromyalgia, restless leg syndrome, depresssion, anxiety.. etc. IT turned out to be in the end,a very simple vitamin B12 Deficiency. Sometimes, things have a simple diagnosis. It isn't always necessary to diagnose with the latest fad.

ACUTE PAIN-OPIOID DEPENDANT-HOSPITAL DOES NOT CONTROL PAIN...

I have been on Opioids for over 10 yrs. due to chronic back pain-spinal fusion, etc. I am on Fentanyl patch, Oxy 30mg x2 and Fentynl transmuscal prn/pain among other meds.

I have not been hospitalized during the past 10 yrs other than arthroscopic knee, and a rear-end accident in which my knee was injured.

In Dec. I exp my 1st of several kidney stone attacks. Since then, I've had 2 lithrotripsy's with cyto's, 1 attempted stone removal, 1 ER visit, 1 inpatient with stent insertion. I have encountered horrible problems with the same hospital in regard to pain control. Prior to outpatient surgery, I'm told not to take my pain meds the day of surgery. I now know this is wrong. Coming out of surgery, has been a nightmare. My husband said he could hear me screaming in pain coming down the hallway from the OR. In recovery, the pain is severe, and I'm told the same thing: "we can't give you anything more, or you might stop breathing!" I've acquired all my records, and I was given 1 mg hydromorphone with pain #8 again 1 hr later (following attemp stone removal & stent removal). Sent home with NO pain meds.

ER kidney stone pain: 1 hr in ER b/4 seeing a Dr. in severe pain-given 2 Dilaudid which didn't touch the pain. After admittance-Dilaudid 2 every 2 hrs. IV push which again didn't touch my 8-9 pain. Hospital never gave me my maintenance meds-even though I made them aware I needed them.

Made a complaint to hospital when I came home regarding problem with acute pain and opioid dependant patients and after "investigating" the problem, hospital came to conclusion, that all meds were properly dispensed!! Who or how would I make a complaint, or how are changes made regarding pain control, so that hospitals can be better informed about treating opioid dependent patients?

Women In Pain Awareness Month

Pa has declared Septetber 2009 as Women In Pain Awareness Month.Ca. also has a recurring Women In Pain Awareness Month each February. Although women have more diseases such as rheumatoid arthritis, regional complex disorder, and fibromyalgia, among others, they tend to have a harder time getting diagnosed and when they do are often under treated.

Women In Pain Awareness Month is an effort to bring attention to this disparity in care.

Thank you.

Carol Jay Levy, B.A., CH.t

author A PAINED LIFE, a chronic pain journey

member, cofounder with Linda Misek-Falkoff, PWPI, Persons With Pain International,

accredited to the U.N. Convention on the Rights of Persons with Disabilities

member U.N. NGO group, Persons With Disabilities

member, ForGrace, WIP (Women In Pain)

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Refocus, an opportunity in CP suffers quest for better care?

Deployment of DEA down to the Mexican boarder? There is a God that listens. Money well spent, now maybe the next medical student or ethical doctor, that opts to take the oath of healing by all medicinal options available, can do so without the unsubstantiated bias of overzealous agents "overseeing" their every move.

That's right, this is the new era of "oversight" with the medical profession next in line to be consumed government by righteousness and control.

I've lost another doctor due to the paranoid atmosphere legally prescribed, taken, monitored, and tested patients face. The bureaucracy will be happy to know this is my 3rd attempt at the holistic medicine approach I've misguiding led myself to believe will work. Please spare me the psychosomatic or somatoform disorder its ALL been disproved. (Remember I have been found disabled by State and Federal Court systems due to CP.)

Diet, vitamins, exercise, walking until both OA filled knees swell to the point of not bending, L4/S1 with a large osteophyte invading my spinal canal stretching in a HOT jacuzzi is my ONLY small relief. Blood pressure which WAS controlled with opiates (115/75).

Yes, opiates were an enabler! Kept me looking for jobs, going to church, volunteering, and just being a good husband and father, filled with hope.

Chronic pain that I suffer, is now introducing a constant "shock" into my body's central nervous system, has now run amuck (185/105). My body has been flushed and detoxified for over a month now, when will this insanity end? It wasn't the medication that was going to kill me, it will be one of those "shocks" that I've grown very tired of fighting.

Now as I lay me down to sleep (On hard floor) I pray the Lord my body to take.

Pain Management: a door of hope for the body and the mind

I have been in pain since I was 12 years old. A doctor gave me an injection to my sciatic nerve. I also was taken to a so called " faith healer " from the age of 3-4 and my back was manipulated and abused terribly. At the age of 19 i had surgery in the L5 facet joints. I have never been the same since surgery. I never use to have back pain, and every day I deal with back pain and sciatica in both legs, burning sensations, contracted muscles, burning feet, u name it, I have to deal with it. Pain levels vary,and with the use of several pain killers I can walk some days without limpin or going insane. I have tried hydrotherapy and found it helpful in pain management. I eventually started swimming, ( slowly with one of those kiddie foam noodles for support, leaning on my stomach and just kicking) I had lost weight in that month,only to fall down and hurt my back. This set me back for two years as I dealt with pain, anxiety and forms of depression that does visit or torment me when the pain levels are at their insanest moments. Sleep, i seldom have it, unless I comatose my self with medication. I am 37 years old and four months ago I decided to start walking regardless of how much I hurt.It was and is a huge effort and sacrifice.I figured that Im going to be in pain may as well be in pain and do something productive, do it afraid says my sister and thats my motto. Its taken almost two years to get back into some light exercise routine. ( i also had ketamine treatment in those two years in hospital and that took the pain away completly, also have ketamine tablets at home in hope they would work, but they to no avail.) I have been walkin an hour almost four days a week, been on a low gi diet and lost in excess of 19 pounds. Weightloss has helped to a degree, however the process of trying to focus on something else other than the pain has helped me battle anxiety and depression ( mild ) As I write this I am ice packing my sciatic nerve as I am in a lot of pain and feel like im going insane, I know it sounds like a huge contradiction compared to my last comment, but getting out and walking with a friend or even on the treadmill has provided some comfort. There is a door of hope out there for everyone. We may not be able to get rid of the pain, but as a Christian I believe their is healing and getting rid of the pain is up to the Lord. I know that he supplies us with wisdom so we can find a strategy to obtain a victory. And I just know that sometimes finding some kind of distraction as much as it may hurt ( like walking for 15 min or stretching or swimming ) may lead you to a better pain management plan or peace of mind, its a sacrifice and at first it will hurt,like any sacrifice. Be transformed by the renewing of your mind is a verse I love and have found it to be useful in my pain management by shifting my attention I am reaping the benefits of an improved peaceful mind. a lot of you have mentioned suicide, there is a better way a door of hope.

Back Pain

It is 9 years ago on St. Patty'ss day, I fell down the stairs and fractured 4 vertebrae in my back(T10-12and L 3-4) It took 2 months of excruciating pain to get a correct diagnosis, 3 months flat on my back, and when I began to move again, found that my back had not healed. After 9 months I convinced a surgeon to do the plastic into the back, but it was too late, and he could not get the vertebrae where they belong. I have lost 4 inches in height, and live on morphine and lyrica. About once a year a pain specialist injects the nerves with a pain killer which does help, but oh, the pain to have it done. On an average day my pain averages about a 4-5 on medication. I work with a chiropractor, that simply works at releasing the muscles, not adjusting the spine. My pain controls my life, I can not walk very far, I can not garden, I can not do stairs, my life has certainly changed. If you have never had this severe pain, you are indeed fortunate. But I wish to die so the pain would be gone forever. My doctor is good about writing my perscriptions, so for that I am thankful.

chronic pain

Until fall of 1989, I was a healthy 47 yr. old women. I took care of a friend after a surgery. With my hands full of glsses, etc. my feet shot out from under me, I landed at bottom of stairs, and since then, I have neuropothy pain from toes to nearly my waist. Also bulging discs,several other problems, all causing cronic such pain, I can do so little, I wonder, what's the use? Dr. had me on oxycodone, which helped me to function nearly normaly,this month he put me on Opana. Not working. Please, who can I go to for relief? I live in MO Kathie P.S. Neurosurgeon said I am not surgical candidate, and will soon wear diapers in a wheelchair. PLEASE, SOMEONE HELP!!!